Had a rough diabetes night last night. Blood sugar wasn’t terrible, but her emotions were all over the place. 😭 Amelia was crying over little things all day and when I laid down next to her in bed and asked what was really wrong the floodgates opened. “Why isn’t there a cure?! I hate diabetes, it’s not fair, I want to die.” I don’t think there’s anything that hurts a parent worse than hearing that. 💔 “No one understands, kids at school say I’m LUCKY because I get snacks when I’m low, I hate doing shots, I hate testing, I hate the dexcom!” 😭😭😭 It’s honestly hard to know what to say because I can’t imagine having to do what she does at her age, well at any age. I tell her, “This happened because you CAN handle this, you ARE handling this 💪🏻 you are the most responsible conscientious 9-year-old. We share all about Type 1 so people don’t say things like, ‘You’re lucky,’ to someone with a health issue they don’t know much about.”

I know it’s good to just let her get the feelings out so that’s what I do. It’s a lot for a kid, it’s a lot for the parents, it’s just a lot. Social media helps paint a picture of having it all together, but we definitely don’t. Emotions are sometimes a roller coaster in this house, my anxiety is through the roof to the point of wake-you-up, middle-of-the-night panic attacks and we have to take it day-by-day. Diabetes is a full-time, literally 24/7 job, for the kid AND the parents and to put it bluntly, it sucks. 😡

I don’t say these things to be pitied or to get a pat on the back. I just want to share what’s real and what life with an autoimmune disease is really like to in turn spread awareness and acceptance to those around us. As always, thank you for being our friends and for supporting us always!